Adam Jacques was a truly remarkable man. He was extremely caring, smart, energetic, loyal, determined and down right hilarious. He was an amazing son, husband, brother, grandson, uncle, Godfather and friend. On top of this, he wrote for both the Independent and Guardian newspapers, travelled the world, and added an enormous amount of energy, joy and positivity to the lives of everyone who knew him well. And he did all of this despite having to battle with cystic fibrosis throughout his life.
Adam sadly left us in February of 2018, however to quote his loving sister Claire, let's continue the conversation about Adam. This space has been created for fundraising to support the work of the Cystic Fibrosis Trust in Adam's name. Any money raised will be used to directly fund a project chosen by Adam's mother, Janet, outlined below. The project needs additional funding to advance, therefore any contributions could have a direct impact on the experiences of CF patients in the future.
The Cystic Fibrosis Trust and The Royal Brompton Hospital are working together with the Johns Hopkins University to develop a UK version of a study exploring the pathway from cystic fibrosis care through to transplantation.
The study will investigate patient experiences of the transplant process and will be directed at people with CF, their partners and also carers. The aim is to use the results to improve clinical practice and outcomes, and also understand when and how is best to have conversations about transplants with CF patients, and how to manage communications all the way through to post transplant support.
As mentioned above, this is an important project where any contributions will make a difference, and one that resonates with Adam's family given Adam's own experience.
A privilege to be able to donate in respect of Janet’s chosen fund In the name of dear Adam
good luck with your target
Twenty years on from when Adam went to the adult CF service, the Childrens' team still remember him with huge affection and respect. What a privilege to be a small part of his life story